论文标题

利用技术来进行医疗保健并保留获得个人健康数据的访问,以增强个人健康和福祉

Leveraging Technology for Healthcare and Retaining Access to Personal Health Data to Enhance Personal Health and Well-being

论文作者

Chatterjee, Ayan, Shahaab, Ali, Gerdes, Martin W., Martinez, Santiago, Khatiwada, Pankaj

论文摘要

健康数据是个人数据的敏感类别。除非有可口的辩护,否则这可能会导致个人和健康信息处理权利和机会的高风险。需要合理的安全标准来保护电子健康记录(EHR)。所有个人数据处理都需要足够的解释。即使在发展中国家中保持医疗数据的访问也将有利于全世界的健康和福祉。不幸的是,仍然有一些国家阻碍了病历的可移植性。许多事件表明,将医疗数据从一名普通医师(GP)移植到另一个医疗数据仍然需要数周。由于缺乏技术基础架构和标准化,几乎不可能跨边界可移植性。我们通过数据映射过程来说明不同人员和数据点如何相互作用和评估EHR可移植性技术的方式,通过一些示例案例研究证明了医疗记录的可移植性的难度。然后,我们提出了一个基于区块链的EHR系统,该系统允许安全和跨边界共享医疗数据。在本研究中也讨论了有关拥有这种系统的道德和技术挑战。

Health data is a sensitive category of personal data. It might result in a high risk to individual and health information handling rights and opportunities unless there is a palatable defense. Reasonable security standards are needed to protect electronic health records (EHR). All personal data handling needs adequate explanation. Maintaining access to medical data even in the developing world would favor health and well-being across the world. Unfortunately, there are still countries that hinder the portability of medical records. Numerous occurrences have shown that it still takes weeks for the medical data to be ported from one general physician (GP) to another. Cross border portability is nearly impossible due to the lack of technical infrastructure and standardization. We demonstrate the difficulty of the portability of medical records with some example case studies as a collaborative engagement exercise through a data mapping process to describe how different people and datapoints interact and evaluate EHR portability techniques. We then propose a blockchain-based EHR system that allows secure, and cross border sharing of medical data. The ethical and technical challenges around having such a system have also been discussed in this study.

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